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Friedreich's ataxia - a story of living with the disease

MedExpress Team

medexpress.pl

Published Sept. 20, 2024 08:21

Friedreich's ataxia - a story of living with the disease - Header image
Friedreich's Ataxia is a rare, progressive neurological disease that attacks the nervous system and muscles. Being diagnosed with this disease is a life-changing moment that changes lives forever. Those affected by Friedreich's Ataxia often face many challenges, both physical and mental. We talk to Karol and Kacper, brothers who have struggled with it since childhood.

The diagnosis of Friedreich's ataxia is a moment that stays in the patient's memory forever. One brother recalls: "The diagnosis was made on my 16th birthday. On the other hand, the first symptoms appeared around the age of 10." At the time, the symptoms were still mild and may have seemed like something temporary. Unfortunately, they began to worsen over time.

"I was in the third year of junior high school at the time. It was additionally the period of middle school exams, school selection. For me, back then, the disease was l...

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