Hunter's disease patients and their doctors fear losing access to treatment. The reimbursement decision for a preparation covered by the drug program expires at the end of the year. Its extension is uncertain due to the high cost of therapy.
Hunter's disease is a rare, severe, systemic metabolic disease. The majority (80%) of patients experience a severe course of it. Symptoms of the disease are observed in children aged 2-3 years. The rapidly progressing disease leads to to skeletal deformities, mental retardation, damage to th...
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