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The government has adopted a Plan for Rare Diseases [EXPERT COMMENTS].

MedExpress Team

Piotr Wójcik

Published Aug. 14, 2024 12:36

The government has adopted a Plan for Rare Diseases [EXPERT COMMENTS]. - Header image
Fot. Adrian Grycuk - Praca własna, CC BY-SA 3.0
"This is long-awaited news" is what experts interviewed by Medexpress say about the government's adoption of the Rare Disease Plan yesterday. We collected comments from clinicians and representatives of the patient side.

Prof. Zbigniew Żuber, pediatrician and rheumatologist, head of the Second Clinical Ward for Older Children with Neurological and Rheumatological Subdivisions in Cracow, chairman of the Expert Council on Rare Diseases of the "Medical Rationale of State."

It is a great joy for me that we have renewed interest from the government. This is excellent news especially for our patients and their families. Rare diseases are a huge problem, affecting about 2.5 million people in Poland. We have waited 11 years to implement the Rare Disease Plan. Our work so far has not been in vain and will be the basis for further a...

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