Patients with rare diseases and their caregivers are anxiously awaiting the full implementation of the National Plan for Rare Diseases, which was supposed to provide better care and access to modern therapies. Although the plan was adopted by the government in August 2021, many of its key points have still not been implemented.
The Ombudsman for Human Rights (Ombudsman) has repeatedly drawn attention to the need to implement the plan, asking the Health Ministry about specific deadlines and the implementation of its points. In response, the Health Ministry reports ongoing work and new agreements on the remainder of the document, but also points to delays in implementation due to the innovative solutions enshrined in the plan.
Key elements of the plan
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